{"id":1057,"date":"2024-11-18T14:23:59","date_gmt":"2024-11-18T14:23:59","guid":{"rendered":"https:\/\/wp.purpldiscounts.com\/?p=1057"},"modified":"2025-06-08T17:32:37","modified_gmt":"2025-06-08T16:32:37","slug":"my-journey-with-chronic-kidney-disease-from-survival-to-advocacy-and-connection","status":"publish","type":"post","link":"https:\/\/wp.purpldiscounts.com\/my-journey-with-chronic-kidney-disease-from-survival-to-advocacy-and-connection\/","title":{"rendered":"My Journey with Chronic Kidney Disease: From Survival to Advocacy and Connection"},"content":{"rendered":"\n<p class=\"wp-block-paragraph\">Hi, I\u2019m Christy, a 39-year-old living with Chronic Kidney Disease. After years of volunteer work, charity and blogging, I now run <a href=\"https:\/\/chronicallychristy.captivate.fm\" target=\"_blank\" rel=\"noreferrer noopener\">my own podcast, Chronically Christy.<\/a> Over the years, I\u2019ve faced countless challenges, but I\u2019ve also built a life full of resilience, connection, and advocacy. Through my podcast, I\u2019ve had the privilege of connecting with patients worldwide, helping others on their kidney journeys, sharing my own experiences, and learning from others, which has become a passion I truly cherish.<\/p>\n\n\n\n<h2 class=\"wp-block-heading\"><strong>A Life-Changing Event<\/strong><\/h2>\n\n\n\n<p class=\"wp-block-paragraph\">In 2006, at just 21, my life took a dramatic turn. My appendix burst, leading to septicemia, peritonitis, and eventually multiple organ failure. My bowels ruptured, and my kidneys failed. I fell into a six-week coma and spent six months in the hospital recovering. When I finally went home, it was with a stoma and a grueling dialysis schedule.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">At an age when I imagined starting my career or planning for a family, I was instead adapting to an entirely new way of life. Hospital visits became my norm. This sudden upheaval forced me to grow up quickly, but I\u2019m incredibly grateful for the strong support network that kept me going.<\/p>\n\n\n\n<figure class=\"wp-block-image size-full is-resized\"><img loading=\"lazy\" decoding=\"async\" width=\"640\" height=\"480\" src=\"https:\/\/wp.purpldiscounts.com\/wp-content\/uploads\/2024\/11\/original-80F5898F-E8E6-4F15-89B0-5FB3ABF0E766.jpeg\" alt=\"A black and white image of Christy, a white woman, she is laid in a hospital bed and looks sad and tired, she is wearing a hospital gown with the words NHS Royal Liverpool Hospital just visible. Purpl Disabled Discount member story\" class=\"wp-image-1059\" style=\"width:644px;height:auto\"\/><\/figure>\n\n\n\n<h2 class=\"wp-block-heading\"><strong>The Road to Resilience<\/strong><\/h2>\n\n\n\n<p class=\"wp-block-paragraph\">This life-altering event reshaped my entire perspective. Despite the setbacks, I returned to university, got married, and underwent countless surgeries, including a kidney transplant from my husband, which sadly didn\u2019t work. But I never stopped pushing forward.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">In 2014, I received a transplant from a deceased donor. Initially, there were complications, but eventually, I regained strength and enjoyed a dialysis-free life for nearly 10 years. With no dialysis we could travel and my husband and I made the most of it, traveling the world and creating memories I\u2019ll treasure forever.<\/p>\n\n\n\n<h2 class=\"wp-block-heading\"><strong>The Challenges of Decline<\/strong><\/h2>\n\n\n\n<p class=\"wp-block-paragraph\">By 2023, however, I began to feel weak again. Gout flares, frequent infections, and the toll of immunosuppressants made life increasingly difficult. Early in 2024, I took steps to prepare for a possible decline in mobility, purchasing a walking stick and an emergency wheelchair. My transplant finally failed in July 2024, just shy of its 10-year anniversary. I\u2019m now back on dialysis, adjusting to its demands while navigating life as a 39-year-old &#8211; wiser, but admittedly a little wobblier!<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">It\u2019s not easy, but I\u2019m back on the transplant list and growing stronger every day, thanks in part to counselling, which I had long resisted. It\u2019s a reminder that asking for help isn\u2019t a weakness; it\u2019s a way to reclaim your strength.<\/p>\n\n\n\n<figure class=\"wp-block-image size-full is-resized\"><img loading=\"lazy\" decoding=\"async\" width=\"1189\" height=\"745\" src=\"https:\/\/wp.purpldiscounts.com\/wp-content\/uploads\/2024\/11\/original-E762DF06-EC65-4B00-BD56-32E5D3A0AA67.jpeg\" alt=\"Christy is a white woman in her late 30s, she is sat in a wheelchair on a promenade by a beach with railing and sand and sea behind her, she is holding a dog lead attached to two light coloured dogs, possible labradoodles. Purpl Disabled Discount member story\" class=\"wp-image-1061\" style=\"width:655px;height:auto\" srcset=\"https:\/\/wp.purpldiscounts.com\/wp-content\/uploads\/2024\/11\/original-E762DF06-EC65-4B00-BD56-32E5D3A0AA67.jpeg 1189w, https:\/\/wp.purpldiscounts.com\/wp-content\/uploads\/2024\/11\/original-E762DF06-EC65-4B00-BD56-32E5D3A0AA67-768x481.jpeg 768w\" sizes=\"auto, (max-width: 1189px) 100vw, 1189px\" \/><\/figure>\n\n\n\n<h2 class=\"wp-block-heading\"><strong>Living with Chronic Kidney Disease: My Advice to Others<\/strong><\/h2>\n\n\n\n<p class=\"wp-block-paragraph\">People often ask me for advice about living with chronic kidney disease. Here\u2019s what I tell them:<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li><strong>Advocate for yourself<\/strong>: Learn everything you can about your condition and never be afraid to speak up for your needs.<\/li>\n\n\n\n<li><strong>Take care of yourself<\/strong>: You can\u2019t control everything, but maintaining your health where possible can improve your quality of life.<\/li>\n\n\n\n<li><strong>Seek the support you need<\/strong>: Whether it\u2019s financial aid, counseling, or community, don\u2019t hesitate to access the resources available to you.<\/li>\n<\/ul>\n\n\n\n<h2 class=\"wp-block-heading\"><strong>Navigating the Disability Price Tag<\/strong><\/h2>\n\n\n\n<p class=\"wp-block-paragraph\">Living with a disability is expensive. On average, <a href=\"https:\/\/www.scope.org.uk\/campaigns\/disability-price-tag\" target=\"_blank\" rel=\"noreferrer noopener\">disabled households need an additional \u00a31,010 a month <\/a>to maintain the same standard of living as non-disabled households. Over the past year, we\u2019ve faced significant expenses as my transplant failed\u2014mobility aids, a foldaway bed for bad days, and countless trips to the hospital for dialysis and appointments.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">I\u2019m fortunate that my husband has a good job, and my <a href=\"https:\/\/www.purpldiscounts.com\/blog\/what-is-pip-and-how-to-apply-for-it\" target=\"_blank\" rel=\"noreferrer noopener\">Personal Independence Payment (PIP)<\/a> helps, but I urge anyone with a disability to apply for all the benefits they\u2019re entitled to. Yes, the system can be frustrating and disheartening, but the support can make a world of difference. If you aren&#8217;t sure what you may be entitled to, you can use our <a href=\"https:\/\/www.purpldiscounts.com\/benefits-calculator\">Purpl Benefits Calculator<\/a> powered by <a href=\"http:\/\/turn2us.org.uk\">Turn2us<\/a>.<\/p>\n\n\n\n<figure class=\"wp-block-image size-full is-resized\"><img loading=\"lazy\" decoding=\"async\" width=\"1718\" height=\"1170\" src=\"https:\/\/wp.purpldiscounts.com\/wp-content\/uploads\/2024\/11\/image.jpeg\" alt=\"Christy is a blonde white woman aged 39, she is smiling to camera wearing a black and white patterned top and is sat on a bench, it looks like she is on holiday as there are palm trees and a concourse behind her. She is holding a glass with red\/purple liquid in it as though she is about to cheers someone and is smiling and looks relaxed and content. Purpl Disabled Discount member story\" class=\"wp-image-1066\" style=\"width:678px;height:auto\" srcset=\"https:\/\/wp.purpldiscounts.com\/wp-content\/uploads\/2024\/11\/image.jpeg 1718w, https:\/\/wp.purpldiscounts.com\/wp-content\/uploads\/2024\/11\/image-768x523.jpeg 768w, https:\/\/wp.purpldiscounts.com\/wp-content\/uploads\/2024\/11\/image-1536x1046.jpeg 1536w\" sizes=\"auto, (max-width: 1718px) 100vw, 1718px\" \/><\/figure>\n\n\n\n<h2 class=\"wp-block-heading\"><strong>Connecting Through My Podcast<\/strong><\/h2>\n\n\n\n<p class=\"wp-block-paragraph\">Starting <a href=\"https:\/\/chronicallychristy.captivate.fm\" target=\"_blank\" rel=\"noreferrer noopener\">my podcast<\/a> has been one of the most rewarding parts of my journey. I created it to connect with other patients, share stories, and help others navigate their own paths with chronic illness. My second episode, where I shared my story, remains the most popular\u2014it\u2019s raw, real, and relatable.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">Since then, I\u2019ve covered topics like kidney disease types, dialysis methods, and the challenges of transplant failure. I\u2019ve also invited incredible guests, including nurses and dietitians, to share their expertise. My hope is that listeners find it helpful, entertaining, and above all, a reminder that they\u2019re not alone. Plus, I sprinkle in some terrible jokes to keep things light!<\/p>\n\n\n\n<h2 class=\"wp-block-heading\"><strong>Looking Ahead with Hope<\/strong><\/h2>\n\n\n\n<p class=\"wp-block-paragraph\">Despite the hurdles, I remain hopeful for the future. Whether it\u2019s finding strength through counseling, advocating for others, or simply sharing my experiences, I\u2019m determined to make the most of this journey. Chronic kidney disease is a challenge, but it\u2019s also taught me resilience, connection, and the power of finding joy in the midst of hardship.<\/p>\n\n\n\n<p class=\"wp-block-paragraph\">If you\u2019d like to join me on this journey, you can find my podcast here:&nbsp;<a href=\"https:\/\/chronicallychristy.captivate.fm\/\">Chronically&nbsp;Christy<\/a>. Together, we can navigate this road and remind each other that even in the toughest times, we\u2019re never truly alone.<\/p>\n\n\n\n<hr class=\"wp-block-separator has-alpha-channel-opacity\"\/>\n\n\n\n<h2 class=\"wp-block-heading\"><strong>A Purpl Disabled Discounts Member Story<\/strong><\/h2>\n\n\n\n<p class=\"wp-block-paragraph\">Thank you to Christy for sharing with us today, if you are looking for ways to <a href=\"https:\/\/www.purpldiscounts.com\/blog\/pip-discounts-and-freebies-2024-maximise-savings-with-your-pip-benefits\" target=\"_blank\" rel=\"noreferrer noopener\">help with benefits <\/a>or <a href=\"https:\/\/www.purpldiscounts.com\/blog\/easy-ways-to-save-money-my-journey-with-utility-warehouse\" target=\"_blank\" rel=\"noreferrer noopener\">saving money<\/a>, be sure to check out other blog posts and <a href=\"https:\/\/www.purpldiscounts.com\" target=\"_blank\" rel=\"noreferrer noopener\">our latest discounts and deals.<\/a> If you would like to share your story please send an email to <a href=\"mailto:marketing@thepurplco.com\">marketing@thepurplco.com<\/a> <\/p>\n\n\n\n<hr class=\"wp-block-separator has-alpha-channel-opacity\"\/>\n\n\n\n<h2 class=\"wp-block-heading\"><strong>Related Articles from the Purpl Community<\/strong><\/h2>\n\n\n\n<p class=\"wp-block-paragraph\"><a href=\"https:\/\/www.purpldiscounts.com\/blog\/my-journey-with-antiphospholipid-syndrome\">My Journey with Antiphospholipid Syndrome<\/a><br><a href=\"https:\/\/www.purpldiscounts.com\/blog\/from-the-skies-to-a-new-reality\">From the Skies to a New Reality<\/a><br><a href=\"https:\/\/www.purpldiscounts.com\/blog\/living-with-chronic-pain-finding-light-in-the-dark\">Living with Chronic Pain: Finding Light in the Dark<\/a><\/p>\n\n\n\n<hr class=\"wp-block-separator has-alpha-channel-opacity\"\/>\n\n\n\n<h2 class=\"wp-block-heading\"><strong>Purpl is committed to helping our disabled community save money and share knowledge to help you on your disabled journey.<\/strong><\/h2>\n","protected":false},"excerpt":{"rendered":"<p>The podcast Chronically Christie about Chronic Kidney Disease<\/p>\n","protected":false},"author":43,"featured_media":1068,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[12,4],"tags":[],"class_list":["post-1057","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-all-articles","category-community-stories"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v25.4 (Yoast SEO v28.1) - https:\/\/yoast.com\/product\/yoast-seo-premium-wordpress\/ -->\n<title>My Journey with Chronic Kidney Disease: From Survival to Advocacy and Connection - Purpl<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" 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